All in regards to epilepsy care at Mayo

Amen Journey

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These lines are so beautiful, yet so real, so tough. But yet I know in the tiniest, minuscule way, what it is like to be beaten. And it was twice as hard for me then, as for I didn’t know Jesus yet. Heard a little about Him, but from the crazy soul that also took his hands to me. So who do I trust? Who do I look to and believe in. Well, sadly, the whole situation didn’t have me running to find Jesus then, it took a year of countless, and unliveable overdoses to get me to call to Him.

My ex and I had no commons. No love. No connection. Sadly, we just had decline from the moment we eloped. All negativity from what was the first song we listened to together after we said I do with strangers, to the night he beat me. First night in our new apartment since my move to Killeen, TX, where he was stationed. My fourth day in TX. He had a lot of built up anger, guilt and stress. Anger I had him in such a predicament in life from where my epilepsy took me when we got pregnant. Anger he had to stay with me due to being pregnant …even though I told him otherwise. Guilt for continuing to cheat on me while I was in Phoenix, first awaiting for my 1st brain surgery, and just after it. His stress I’ll credit him for being listed and unable to talk to me about going to Iraq in the beginning of 2003. But this is life. We both had a deck of troubled cards, but to place lives of loved ones on the line for ones own happiness?? What world did he come from??? We HAD a one year old together, I am just not sure how one could let their anger bust like that. But, I do know for a fact, it runs in his genes… His dad was one anger induced soul. I am sadly, very happy he is no longer a part of my child’s life. Signed her over completely to me in 2009. Sad to show who was wrong. Who felt guilt. Who couldn’t put up a fight for rights, when one didn’t have them, and really didn’t want them from the heart. Only greed and anger.

He took his fist to me night of October 6, 2002. And I didn’t know what to do. We were phone- less. I knew no one. The neighbor believed in backing up soldier to soldier. I didn’t sleep a wink. But thankful my daughter didn’t hear one peep of all that ruckus … And somehow slept so soundly thru it all, like Jesus was cradling her in His arms- guiding her to walk on water thru the storm. She arose, as happily as usual. And her mama did her best to not show any fear. But Lord did I ever brake.

I had to take him to the base that morning, as for it was my car we had- and he wasn’t going to be using it. And he also wasn’t going to be coming back that evening. I had no idea what to do, who to talk to, as for I didn’t know a soul. First person I called was my neurologist. I had to make sure he’d get me clearance papers noting that even though I had just gone thru my 1st brain surgery, I was still a perfect case to handle being a mom. He has always been one amazing Doctor, who saw that thru, made sure I was ok- and saw me thru the disastrous year to come from it. He supported me like I was his one daughter. He saw my struggle with my one daughter and couldn’t have imagined that. He despised my ex. My other phone calls were to a friend I was connected to thru my work from the Marriott for years, he was like my uncle. He listened to all my marital issues, and helped me see clear thru it all. He had this “perfect” life, knew this Jesus guy, and was happy. He was also the one that connected me with my husband of today. How rare is this? So I briefly spoke with who was my friend then, but my husband today, told him what disaster I came upon. Last one I spoke to, my mother. As for she doesn’t deal with reality well. She wouldn’t listen to my truth, and was in denial anything really happened. That is sadly my family. Tory is the one at that point who kept me as sound-minded as I would possibly come. As for I was on a sick cycle carousel ride, and it seemed I just couldn’t get off. Not even for the life of me.

So after the filing of all that occurred, the pictures being taken both on base and at the police department…. They took his keys away, and he was no longer aloud in or on our apartment grounds unless appointment made and with an officer of higher ranking. He only did that once, and not to see my daughter. But to beg and plea I don’t charge him with anything. So my mind was running fast pace, I was so confused, hurt, in anguish. My first answer that came to mind- phenobarbital overdosing.

I was placed on so much of it when pregnant with Tory, it was the first thing that snapped into mind when I felt I was losing my mind from it all. I needed to numb my pain. Shut off lights per se. And whatever the consequences, so be it. I had no faith then, no Heaven nor hell knowledge. Just thought there was an exit door. And a lot of phenobarbital would get me there.

Well, normally at my dose intake, it would take lives. But I guess He did, and does have more plans for me, as for I am still here, breathing, heartbeat, and three brain surgeries and so much else later, able to retell my story. As the parent of Tory, able to tell you how God worked so many wonders for her and thru her, I have no room to begin to tell you. She is like an angel, living here on earth. Placed in my life to keep little me safe, well, and searching until I find my Lord. And did she ever get me there.

We went thru so much together, she really has no idea at this point in her life. Just a little I’ve told her here and there. But I became her sole parent, which felt like a direct gift from God. It wasn’t something I was fighting for. It was something He just gave me overnight. Thru all my struggles I had really no clue until then how close Jesus and I really were and are.

Fast forward, my overdosing began in October of 2002, and didn’t end until October of 2003. That year was rough. I was raising my daughter completely on my own, not partially. I was living day to day half awake, or completely blasted from overdosing Phenobarbital. I was dating my husband of today, which was a lot more than I ever thought looking back, that I could handle going thru, putting myself thru everything I did. But I am so gracious to God I did. He is my everything. My air, my rest, my life. Without him, I probably would not be typing right now. As he snores, with his hand on my typing arm. �� God gave me all these precious jewels, even before I knew Him, as for He knew what was lying ahead- and knew my family couldn’t handle it, wouldn’t be there. He gave me these tough Angels that could deal with rough souls like me. How one can look back in life at the lowest part of their life, toughest, yet have such amazing vivid memories their cherish? Not usual you hear of someone saying their overdosing year was full of amazing memories….. Sounds nuts, but is so true.

I knew come 3rd hospitalization, really, since the 1st, I would never see my ex again except at court hearings. But it was that October that rolled around and I snapped. He had called me from Iraq, which led to an argument as to why did he ever do what he did? Beat me a year prior that had me in such a predicament in life. Well, out of no where he was in denial now. He was denying he had done that after e-mails and phone calls of sorry’s. Well, that call on October 18th , 2003… Hit me hard. Like a stone at a glass house- I shattered. And my answer, was the months worth of Phenobarbital I had not been taking, as for I hated it. But I also didn’t rid of it, I psychologically stored it up for a big thundercloud day. And he was my thundercloud.

The brisk morning of October 19… I popped half my bottle, which was around 4500 Meg’s of death calling me. I called a friend, we went to the gym together and then took our kids to the mall. Had I not taken a friend with me, I wouldn’t be here still. After we worked out, ending roughly around 11 am, I began to feel the fall of my pills, and I just wanted more. More cloudiness. More thought my mind might completely exit even. I never once put my child’s life into range of thought. I just really figured all would be okay, really the same without me. That is what being beaten does to you, brain surgery, phenobarbital. Just up the dose almost 10 x’s.

We were at the mall after I sucked down the other 4500 mg’s of Phenobarbital. My mind was blown. I was not on earth anymore. I bought items for Tory, twice. No idea. My friend knew I was “out to lunch” and didn’t know what to do. So out of no where, except the grace of Jesus- I picked up my cell phone and called the number to my neurologist that he called searching for me on one night in July, gravely concerned of my well being. I called that number, his wife answered. I felt so bad. I didn’t even know the definition of full sentence. She quickly gave the phone to her husband, my doctor. And he advised me to quickly get up,to their Emergency Room.

I told my friend. But told him I had to go home and get ready first. I really had no idea if I even strapped my baby girl into my car or not- but sped out and swerved going 80 in a 40 street. Almost running a red. It was like life flashing before my eyes. Little do I remember from when I got to my apartment to when I found myself on a gurney at my Mayo Hospital. What I do remember is seeing HIM, hearing HIM, and calling out to HIM right before they went to pump my stomach- life got so dark…. Then a light glowed. It was like Him saying, ” this is your second chance” when in reality it was my billionth chance. I had been seeking Him at this amazing church in Chandler, AZ…. went there because the sign had a purple tone to it. But it wasn’t the color talking to me, it was Jesus. And His plans were so Devine , so beautiful…plans to prosper- for good and hope. Not disaster. Jeremiah 29:11 The 29th is the date I got out.

I went thru every step of destruction. Code blue, heart stopping, stomach pumping, CPR. Coma. But it was like Jesus was truly physically with me, but no one could see Him but me. He was my life support. And when I arose, it was like there was not a huge overdosage of Phenobarbital running thru my blood, but His love, His blood, His truth running thru them instead. My head was instantly so clear. It was like I was a totally different soul. When in reality, I was. As for just before my heart stopping is when I called out to Christ…. I asked for a billionth chance to do it all again, except WITH HIM this time. And I’ll figure it all out thru Him, with Him, for Him. He hears these cries. Some more obvious than others. But baby Christians are coddled for sure. But if He hadn’t, I wouldn’t be here. He if filled with so much love and grace for me to screw up in every way possible … But to fight for me? Why? He loves me … You, us… Unconditionally…and that is a fact I have lived thru a million times.
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He gave me a heart. I thank Him for that. I love people. I hate struggles. I reach to help. You aren’t alone. If I wasn’t, you aren’t. His plans are beautiful. He gave me the glory and honor of marrying this amazing person he set in my life in such an interesting fashion- the date my ex beat me, five years prior. We we’d on October 6, 2007. Took that day and showed how are Lord beautified it. We conquered Satans actions by having the most amazing marriage after complete destruction….and a child of our own, she has always seen as Daddy since she was barely 2. She sees no differently. He orchestrated it beautifully. How really could I ask for more? You’ll see me complain about my health. But I try to see these days, this particular month more often. That way I know when to shut up, and just glorify Him. His peace has been done, and I am ok with all brain and pain issues. He gave me this family. I am so gracious. Cause I am one who didn’t deserve it.

So much I can’t explain in a blog, so much I wish I could share. But that is as compact as I can get it. I am gracious He gave me all of you.

To God be the Glory, Honor, and Praise to our Lord!!

In His Grip,

Heather/ Hetty Siebens

 

<p><a href=”https://vimeo.com/141508461″>Grateful To God For You</a> from <a href=”https://vimeo.com/aliveinme”>Hetty Siebens</a> on <a href=”https://vimeo.com”>Vimeo</a&gt;.</p>

Jeremiah 29:11 “For I know the plans I have for you,” says the LORD. They are plans for good and not for disaster, to,give you future and a hope.

Psalm 91: 14-16. The LORD says p, “I will rescue those who love Me. I will protect those who trust in My name. When they call on me, I will answer. I will be with them in trouble. I will rescue them and honor them. I will satisfy them with a long life and give them My salvation.”

Psalm 106: 1-3. Give thanks to the LORD for He is good! His faithful love endures forever. Who can list the glorious miracles of the LORD? Who can ever praise Him HALF enough?
Happy are those who deal justly with others and always do what is right.

Romans 15: 13. So I pray that God, who gives you hope, will keep up you happy and full of peace as you believe in Him. May you overflow with hope thru the power of the Holy Spirit.

Philippians 1:29 for you have been given not only the privilege of trusting in Christ but also the privilege of suffering for Him.

 

Struggleville

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In Struggleville.

Which isn’t total disaster. A struggle means you are trying to actually get somewhere with it, some sort of progress. When you are just suffering, you can call that baby suffer-ville, end of the road, darkness, just name it- when there is no answer starting to grow on the horizon, it is suffering endless skies. Irony is, today was the date I came in for seizure study #2 to start my new walk to my 2nd brain surgery-way back in 2004. Type of struggle… Had answers and hope. 

Thats basically the adjective difference between Mayo in Phoenix I’ve gone to over 13 years, and it’s ” sister ” property around the corner from us in Jacksonville, FL….. Phoenix has yes a Struggleville to go thru, yet it’s on a horizon of hope. As where Jacksonville just leaves you suffering, and hopeless, completely in the dark with promised call backs that never returned. To actually know that by memory, but then fly out instantly and see first hand from all of my doctors, it was quite the awakening of what that Mayo doesn’t have in store for me, actually, for many.

This one in on the ball. They don’t let things freak them out like me having epilepsy- to steer a migraine medication attack away. They still attack it, just more calmly, and on video, in case I do seize, they have all precautions to stop that in the middle. They watch over the patient that may have a wild reaction to medication, but don’t just give them a medication that could be risky for seizures then send them off their property. Mayo in Phoenix cares that their patient stays well. They love you as their patient, but really don’t want to see you TOO often than needed.

This has been one wild roller coaster ride for me. I’m at the point I can eat again. But my head hurts from my neck/occipital nerve pain- which that also shoots pain into my ears. Just wild. Calmer sadly to say than when I first got here… But it is something I sure am praying dissipates.

I am trying to get off of all anti seizure meds and go on one. Never thought I’d try this one in my lifetime again. I had bad history with it, bad life going on with it, just a full blown nightmare I was living when we first attempted it. We will see how it goes. I am so sensitive to everything. I feel for the docs when I walk in their office here. But God has to have some unique plan still brewing, somewhere … About something, or I wouldn’t have been able to hang on so tight.

Gracious to all your prayers….

Hetty/Heather Siebens

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Thank you Dr. Vargas, Dr. Drazkowski, Dr. Stonnington, and Dr. C….. All the Mayo System nurses, food, cleaning etc team… You all make this part of life bearable.

Joshua 1:9 “Be strong and courageous. Do NOT be afraid; do NOT be discouraged, for the LORD your God will be with you wherever you go.”

My Home Away From Home in Phoenix from Hetty Siebens on Vimeo.

It’s been a Struggle

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    My constant EEG therapist and friend up above….. Luann

    …. One no one could live without.It has been absolutely frightening for me, and utterly painful as well, to sit thru such tragic agony trying to kill this absolutely ugly new type of migraine- most likely hitting me from the constant weather fronts in FL, along with allergies and sinus infections I never used to get. But it’s all there in FL now.

    I’ve been living a nightmare since I got there…. Lord will it ever freak me out to go back. 

    The doctors here are so friendly, logically, smooth, yet all about your quality of life. So if you bring something up that may interfere… They will argue for your defense. They study you, as their patient, as they studied to be who and what they are today … These doctors didn’t leave that in school, nor just hand it over to a different doctor or ED to take care of like the Mayo Clinic in Jacksonville,FL does. They strive thru every step figuring out with us, which test is next, which one are we missing. How can we kill the pain, what will guide us, and if not, what meds are best to stop it, not cause rebounds, and have little risk of issues during injection?

    We have 3 meds for direct pain on board, several others that also help while helping other issues. We increased one I seemed to have been tolerating well, even took it back in 2003 well. DHE. It was fine at the lower dose when nothing was working yet, then we upped it. Second dose felt weird. Third I flipped out. My chest felt like someone was 400 lbs and standing on my chest. I could barely breathe, move, nor could I use my forearms. It took hours and a hefty dose of Morphine then Ativan and Benedeyl to calm it down. So that is out of my protocol now. 

    Pain is still there, but I am still here, well enough to tell some of the story. This week should calm down soon, it is just sadness this comes along with having your brain resected. 

    We are altering my anti seizure medication so I’m able to take basically 1-2 types of meds, as long as this one goes thru. This was a tough choice with my history long ago when it came fresh off the market for me in a bad situation…. Keppra. Swore I’d never see that pill again. I was in bad circumstances, terrible meds, post partum when placed on this suicidal drug…. Logic of Alabama. So we decided, it was before all 3 brain surgeries, and the life I get to live today…. Will be interesting to see the difference in it this time, we will see.
    Much love to all!

    Hetty/Heather Siebens

    Ephesians 1:4 

    Long ago, even before He made the world, God loved us and chose us in Christ to be holy and without fault in His eyes.

    First doc above here is my migraine neurologist-Dr. Bert Vargas-gifted heart felt soul….thru whom I am so blessed. 

    Then the one below is the one almost all know about thru me … My earthly god as my Epileptologist-savior of my life, one who lives life, makes sure all live life to its fullest … Dr. Joseph Francis Drazkowski 

      

    All of this specialists are located at the Mayo Clinic in Phoenix, AZ… And would change your life forever. Blessed be His name up Above for my guidance HERE.
    As for the crazy loons and toons who don’t know how to communicate with higher staff, nor patients, located in Jacksonville, FL…. You all can suck in the high points and quotas from the Phoenix and Rochester properties …as for we know, we know I do, the south is just a bit slower ALL TOGETHER.

    I am blessed.

    Blessings.

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    New Me from Hetty Siebens on Vimeo.

    My Man thru My Chaos

    Big kudos, praises, blessings to my husband Christian for being here in the being on the horrifying chaos of my severe pain and treatment/testing at the REAL MAYO CLINIC that cares whole heartedly from docs to housekeeping and beyond. This has been so tough, but wow, what amazing treatment from all in family, MY MAYO, friends, acquaintances, overall God…..Imlove you all…..
    Hope this is over soon.
      

    Dear Management of Mayo Clinic in Phoenix, AZ….
    You all have been nothing but way past high expectations, life saving, heart wrenching goals…. But can you PLEASE explain the differences between you, as a faculty, and the Jacksonville property. I am appalled, stunned, hurt, angered to the point I am in more pain and nauseous each and every day from the stress of what the ED put me thru here in Jacksonville, what the Neurologist put me thru, what his lack of concern and attention put me thru…. ER’s lack of care and response- most of all- “Dr. Kristin Thompson’s” lack of care, integrity-yet gift of being judgmental???? 
    I called my “neurologist ” the prior week of returning to the ED in Jacksonville, FL, as for my terrifying pain returned. The nurse said he could not return my call until the following week, middle of. Ok. So I clung tight. That rolls around. No call. The end of that week rolls around, zero. All we got was one message the day I called was that the “neurologist” said to take any issues I had to the ED. So….I did AGAIN. As for MY REAL neurologists that care are located on Phoenix property, and have to squeeze me in. They never gave up on me for 13 years, still counting. 
    However this lady doesn’t even look at my full history …. Yes, I almost lost my life from overdose…. But of one, only ONE PARTICULAR medication that my Epileptologist knows that I cannot take- we know that. My brain/body is addicted – not me as a whole. But I don’t have any issue with any narcotic, anywhere. I don’t have any in my house. I don’t call Mayo for ANY. I wouldn’t see a speciality neurologist for migraines if I had that issue. If I had that issue, I would never see my amazing Dr Bert Vargas in Phoenix. If I had that issue still, I wouldn’t see my neurologist that saved me, put his life and job on the line for me, Dr Joseph F Drazkowski. Why is Phoenix so full of care and dignity, yet I’ve only been living my nightmare since I moved to Jacksonville-well, since I moved here in June this year? 
    I have had 3 brain surgeries for my epilepsy by the AMAZING Dr. Richard S Zimmerman. 3rd one done awake. We are quite the team. I am one strong, tough, want everything gone cookie!!! But, we snipped a couple places I was so eager to rid of, that ever since then- (a Few months after my last surgery Feb 12, 2010) my body has been reacting to climate change, altitude, barometric pressure, monsoons- in sporadic ways. All very different. I am slowly learning with each move, which one I can handle better. I have never been in as much agony as I am right now located around the corner from the Mayo in Jacksonville, FL. The pain is unbearable. No pill makes it subside-so why would I even pack on weight and take them?. It is frightening. I am allergic to everything here, and have such sinus issues on top of migraines that make me so immobile it is unexplainable. Yet, this “doctor” sends me to the ED, and that “doctor” gave me 6 minutes of absolute rudeness. She didn’t ask anything about my pain worsening, is it from storms, etc. she judged me as a junkie, told me what she WOULD inject me with, before I had to LEAVE IMMEDIATELY. This is MAYO?? My CAT Is named after this facility. But she treated me like I was foreign. But, never had the guts to even tell me this to my face. She placed this on my record. Please explain to me, why??? What is so different about that place? No one goes to the ED. Go in there- you are in ASAP. They refuse real treatment. I am so confused. Arizona Mayo, Rochester will exhaust themselves before sending you home-clear answers or not. 
    I don’t want money back, we are on payment plan with you all. I love the Mayo in Phoenix. But I am hurt, let down, confused, belittled. After I fought so hard to get where I am today- that doctor, that facility owes me an apology in person. They are a disgrace to your faculty, to your specialists, to your care and concerns. 
    My ex husband beat me 2 months after my first brain surgery, helped lead me to overdosing. But that honestly seemed easier on my heart than this does. I really need to know how to get a clear cut answer.
    We will be moving back to Phoenix in shorter time planned, as for this state has me very ill. We never knew I would ever have such allergic reactions here. But, thankfully it’s an odd blessing to leave them behind …. But I just need clear cut answers. Until then, I continue to fly 6000 miles to see proper specialty doctors in Phoenix Mayo. And I thank you so much for that ….
    Your Patient at Mayo Clinic in Phoenix,
    Heather J Siebens

    480-717-0609

    5-910-382-0

    To God Be the Glory, Honor, Praise!

    THIS WAS THE MOST AMAZING SURGERY OF THE 3 RESECTIONS I’VE HAD DONE-TOTAL OF 6 TIMES BEING OPENED! I RECOMMEND THIS OVER ANY BRAIN SURGERY-ANY DAY-AS LONG AS YOU AREN’T FEARFUL… AND CAN TAKE SOME PAIN TOWARD THE END! WAS AMAZING!!!!

    To God Be The Glory!

    Heather Siebens

    I am so grateful my neurologist clued me in on what were my auras, what were not, what were seizures- and my neurosurgeon was able to take the first set of the worst ones out in my 2nd brain surgery, then 3rd awake brain surgery. My Mayo Hospital in Phoenix, AZ always continues to strive to give you a GREAT Quality of life, if not more.

    Blessings.

    In His Grip,

    Heather/Hetty

    To God be the Glory, Honor, Praise.


    It used to be due to several cruel people, really. But this one truly took the cake. No one can take someone (for example, myself), who has conquered so many health battles in life, and in turn use those same health battles against me. What I am referring to when I say this? The horrific “Special Notes” written in a biased and untruthful manner by Dr. Kristine M Thompson (a physician in the Mayo Clinic Emergency Room in Jacksonville, FL).

    This place lacks dignity, care, testing, solutions, strategies. The core of the problem is the amount of staff, next problem, the type of staff.

    We can all go back in 2003 and discuss…what I went thru, what my neurologist from Mayo in PHOENIX AZ… went thru without a wink- TO SAVE ME…. But I do not take judgements from ED people, who haven’t chosen a specialty- who don’t stay true to their patients….. and who do not bring up your history charts to see that you have never once sought out pain medication in your lifetime. Been in excruciating pain that my… MY doctors, no- MY SPECIALISTS in Phoenix, AZ Fight and test, and fight, and retest until everything is exhausted…. Then pick up again and start over.

    So, in a move I think anyone would agree was a very well-reasoned, we decided on Jacksonville, FL – which so happens to have a large Mayo Clinic minutes from our new home. We all agreed that having Mayo Clinic so convenient and close to my house in Florida would help this pain disaster. Until we GOT back, we didn’t figure but a second round for pain treatment would be needed for my ferocious pain here at the JACKSONVILLE MAYO AND  will be traveling back to the REAL MAYO- at Mayo in Phoenix, AZ…. since no one here calls back, and no one here tests or cares. Which is totally ok, I’ve ALWAYS LOVED THE ONE IN PHOENIX…. I named my cat after it. I had all 3 brain surgeries there and more. And they push on. Respect.

    We HAD to go back to the ED in hopes these people, like Dr. Braggs, or really more off Dr. Thompson were just living nightmares, that may have repeated more than once or twice, but it could have just been their foul weather here, their bad short stocked nights, or really in fact, that they were just as horrifying as they really came across each and every time???! I give people more than second chances, right!!?? Well…. Dr K Thompsom belittled me in my pain, and discomfort to the point I was already nauseous from pain- but she threw it out of proportion. Judging me WHY I REALLY was there, what for, and she would control what medication to prescribe – which I don’t have necessarily true allergic reactions to, but rather can have sensitive reactions to that defeat the purpose of the medication.

    Did Dr. Thompson EVER read my 13 year devoted chart to Mayo, at least Mayo in Phoenix and Rochester? NO. She would have seen I invested as much time, energy, money, trust, and health into MY docs, that she had zero idea where I was standing today in life. She has poor judgment and clarity… For that should not be “caring” for anyone. As for hers isn’t just a rainy day. Her additude is every night and day.

    So due to Braggs, John, many others and of course, Dr. Kristine M Thompson, I will fly 3000 miles and back every week before I EVER drive 3 exits to see them ever again. The facility as a whole is disrespectful. There is zero care of your concerns… You are just a number at THIS MAYO IN JACKSONVILLE, FL…. THE REASON people in the Midwest to the West Coast NEVER HAVE HEARD A PEEP ABOUT THIS MAYO. The reason THIS MAYO even runs a LITTLE DIFFERENT SHIP and has its own “secondary” number as opposed to just the ONE Clinic number.
    The Mayo in Jacksonville, FL won’t end here… Neither will Dr. Kristine M Thompson. This is when things just begin. And you just wish you would have thought twice about NOT BEING IN THE MAYO SYSTEM OF RESPECT, INTEGRGRITY, NON-judgmental of your patients…. Like the Mayo in Phoenix, Scottsdale, AZ…. And Rochestser and all sister hospitals in MN. You have truly begun a nightmare Miss Kristine Thompson…. Unless you know how to apologize, admit failure, face to face and on paper work in the next 90 days…. You have so much to answer. I will be there. But you owe all, ALL OF MY WESTERNIZED MAYO’s SORRY’s. We live a bit different sharp life in Western America- which is I guess why people look for Western medicine. Start With my neurologist, I’d be thrilled to go down a list of people you need to include Ms Thompson. As for my doctors never fade. MINE DONT….

    Keep working the way you wish…. I will keep traveling THE FRIENDLY SKIES to Mayo in Phoenix, AZ….. BLESSINGS.
    IN HIS TIGHT GRIP,

    HEATHER J SIEBENS

    8-31-15

    To God be the Glory, Honor, Praise!

    Proverbs 13: 13

    People who despise advice will find themselves in trouble; those who respect it will succeed.

    Proverbs 24:12

    Don’t try to avoid responsibility by saying you didn’t know about it. For God knows ALL hearts, AND HE SEES YOU. He keeps watch over your soul, and He knows YOU KNEW!! And He will judge ALL people according to what they have done.

    For Dr. Joseph F Drazkowski, Dr. B Vargas, Dr. R.S. Zimmerman, Dr.Cynthia Stonnington …. This verse below applies to you all so perfect in my heart-with so many thanks! For God has used you all as a distinct tool and continues to in this generation-yes for me!!! But Amen for ALL. Bless you all ….this is for you….

    Matthew 4:24

    News about Him (Jesus) spread far beyond the borders of Galilee so that the sick were coming to be healed from as far away as Syria. And whatever their illness and pain, or if they were possessed by demons, or were epileptics, or were paralyzedHE HEALED THEM ALL.

    Cut and Stapled Many Times from Hetty Siebens on Vimeo.

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    This is the man, the doc, the neurologist at Mayo Hospital in Phoenix AZ….HE is an Epileptologist, Professor at Mayo, high ranked not just by me, but so many others. He is a son of 6, Husband, father to one beautiful daughter. He also loves to ride very nice motorcycles, and has an array quite a few. He is a very deeply caring doctor… Never wants to throw the towel in, no matter how complicated neurology is. Yet he is so loving and compassionate and fights for your rights. Not many neuros in this works like that. In fact they strain to take your drivers license away more than fight for you to have one. He is all about your quality of life being positive, or your seizure will go out of whack, and more.

    I’ve been his patient since February 20, 2002 at 2:00 pm. Man when I first saw him, he looked rough like I had a lot to answer or have him to set me straight. No. He is very funny and as many on the 5th floor have named him, a teddy bear, very gentle and caring to all. 

    I have been living this neck, head, forehead, eyes, nose bridridge, ears all killing me pain, off and on for months- it just exceeded worse today and even my eyesight is off- and I went to the ER here in FL to hopefully alleviate pain. It wasn’t going far, nor were my calls to this neuro at the Mayo here in FL. Out of the blue, While crying in pain at the Mayo  here I just think is in la la land here in Jacksonville, FL….I got a call from my lifetime neurologist at the Mayo in Phoenix. Says if I can clear my schedule he’ll set up all tests to figure out what to do. Cause I can’t go on like this. I’m sure trying, miserably failing. 

    I truly thank God for placing Drazkowski in my life. I wouldn’t be alive today had he not been. He was a pusher for me in my over dosing days, after my ex beat me, to keep seeking God. He kept me proud I did. There just aren’t many like this out there. His poor voice crackled to my tears…. We go so far back like we are blood related, uncle and niece….and he fears losing me. He has a heart no neurologist has- zero. And should have every award under the moon. My life is only sane and grounded and livable thru Draz. I sure thank Jesus for him in every life he is part of. He changes lives and health for the good, never to give up. These are the moments I can hold onto hope still….. I am blessed.

    Bless you all…

    From my journey to yours!

    Heather/Hetty Siebens 


    To God Be The Glory Honor Praise!





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    I still try to be goofy me, no matter how much pain I am in.
    But this has been very outrageous.
    Ever since I got here to FL it has all been on fire. My neck kills in pain, runs up to my head, my ears, my eyes…. and when there was brief relief-it was extreme body pain. Didn’t ever seem to matter what medication I took-what infusion I got-it was never getting better. We are now on month #2- God only knows how many doctor appointments, how many horrific ER visits here in the south-wonderful Mayo Clinic-but day and night from mine in AZ. It somehow actually became humorous thru it all. But this just isn’t ending. I will be up past 4 AM almost every night due to crazy pain making it unable to fall asleep- so language is a bit altered from that and short term memory. It is just so so frustrating. And everyone always wants to write it off as Fibromyalgia. Always. There is just more to it. Much more. It’s fine to have “that” too…. but there is more to this when your brain has been resected three times. More has to be dug into. But Lord, we wouldn’t want to go to far, now would we.??? Thank you Obama…. no matter how great your insurance is- how amazing your tests are- it still boils down to how much more do we have to do?? In 2002, 2003, 2004, 2005, 2006, 2007, 2008, 2009, 2010 even 2011 and 2012 were okay? They’d do everything from the moon and back. But things began to get a bit harder. Less in depth. And hard part is- this is the worst pain I’ve had ever. What test is this dear Lord?
    I try my best to remain positive. Active. Loving. In Love with my family and Jesus. But wow can I fall apart. It’s just truth of the matter. I push myself so hard to see life from other people’s shoes. My friend Alissa just went thru bone marrow transplant, another friend another drastic surgery for cancer-still in ICU months later…. my friend Ashley who has epilepsy who deals with daily stress with seizures- with her adorable young kiddos. And my friend Mary who has dealt with hard cards for several big illnesses, yet has it in her to look up so much info for me one late night. This is God.  And thank you Cathy for the 4 hour talk….. we sure were able to connect and vent such similarities!!! I am blessed in these ways- and hanging on… but wow- am I ever in pain.
    My husband and daughter have hearts beyond the moon. As if they are standing in Heaven with Jesus. Christian looked up info where a lot made sense. Perhaps it is the Gluten in food. We will try that. I just don’t know if that is what is affecting these quick come on’s with my neck, head, ears, face pain. It is so hard to talk it hurts so bad. But I do. I can’t go without that. I press on. I love you Jefferey for driving me home last night cause I whimped out at your house finally- I just talked to much. I have a limit. You are blessed Alissa.
    I truly thank God for you all. You all always have so many kind words- uplifting for me. I know I don’t say enough. It has just been so hard. I am trying. This blog is an amazing step. It is just very hard. Feels like my neck is broken. Funny thing is…. our new home- we live on Neck Rd. Now isn’t that ironic. Does God get a kick out of these things, or what.
    I am sure praying people aren’t feeling like this- that maybe for once my prayer to take on other’s pain came true… cause it is a lot. I couldn’t imagine worse right now. But I sure know it is out there- that is the scary part. I am always proven that. For those words- I am praying for you all. You will touch so many lives.
    All I can say is I try to stop crying and keep my head up… so to say…. and know I am not alone….
    So much love and prayers to you all… I am never far away…. text, call, skype, message.
    In His Love,
    Heather/Hetty Siebens
    Joshua 1:9
    “This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.”

    Matthew 4:24
    News about Him spread far beyond the borders of Galilee so that the sick were soon coming to be healed from as far away as Syria. And whatever their illness and pain, or if they were possessed by demons, or were EPILEPTICS, or were paralyzed-he healed them all! NLT