It’s been a Struggle

mèokem

  
My constant EEG therapist and friend up above….. Luann

…. One no one could live without.It has been absolutely frightening for me, and utterly painful as well, to sit thru such tragic agony trying to kill this absolutely ugly new type of migraine- most likely hitting me from the constant weather fronts in FL, along with allergies and sinus infections I never used to get. But it’s all there in FL now.

I’ve been living a nightmare since I got there…. Lord will it ever freak me out to go back. 

The doctors here are so friendly, logically, smooth, yet all about your quality of life. So if you bring something up that may interfere… They will argue for your defense. They study you, as their patient, as they studied to be who and what they are today … These doctors didn’t leave that in school, nor just hand it over to a different doctor or ED to take care of like the Mayo Clinic in Jacksonville,FL does. They strive thru every step figuring out with us, which test is next, which one are we missing. How can we kill the pain, what will guide us, and if not, what meds are best to stop it, not cause rebounds, and have little risk of issues during injection?

We have 3 meds for direct pain on board, several others that also help while helping other issues. We increased one I seemed to have been tolerating well, even took it back in 2003 well. DHE. It was fine at the lower dose when nothing was working yet, then we upped it. Second dose felt weird. Third I flipped out. My chest felt like someone was 400 lbs and standing on my chest. I could barely breathe, move, nor could I use my forearms. It took hours and a hefty dose of Morphine then Ativan and Benedeyl to calm it down. So that is out of my protocol now. 

Pain is still there, but I am still here, well enough to tell some of the story. This week should calm down soon, it is just sadness this comes along with having your brain resected. 

We are altering my anti seizure medication so I’m able to take basically 1-2 types of meds, as long as this one goes thru. This was a tough choice with my history long ago when it came fresh off the market for me in a bad situation…. Keppra. Swore I’d never see that pill again. I was in bad circumstances, terrible meds, post partum when placed on this suicidal drug…. Logic of Alabama. So we decided, it was before all 3 brain surgeries, and the life I get to live today…. Will be interesting to see the difference in it this time, we will see.
Much love to all!

Hetty/Heather Siebens

Ephesians 1:4 

Long ago, even before He made the world, God loved us and chose us in Christ to be holy and without fault in His eyes.

First doc above here is my migraine neurologist-Dr. Bert Vargas-gifted heart felt soul….thru whom I am so blessed. 

Then the one below is the one almost all know about thru me … My earthly god as my Epileptologist-savior of my life, one who lives life, makes sure all live life to its fullest … Dr. Joseph Francis Drazkowski 

  

All of this specialists are located at the Mayo Clinic in Phoenix, AZ… And would change your life forever. Blessed be His name up Above for my guidance HERE.
As for the crazy loons and toons who don’t know how to communicate with higher staff, nor patients, located in Jacksonville, FL…. You all can suck in the high points and quotas from the Phoenix and Rochester properties …as for we know, we know I do, the south is just a bit slower ALL TOGETHER.

I am blessed.

Blessings.

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