All in regards to epilepsy care at Mayo

Archive for May, 2010

Time Flies

Mommy's Angel

My little girl turned 9 April 17th this year…. so this was my 9th Mother’s Day….

This was also my 3rd brain surgery I had, 3 months ago May 12th!! That was such a blessing… as for these were the first of her birthday and Mother’s Day I was truly well for. And for that, I am so grateful.

It took many years of pain, anguish, tears, struggles, re-gripping, grasping Christ in faith all over. As for it is very difficult to go thru two prior brain surgeries that did good in small circumstances for seizures and auras, helped my faith grow more and more-become reliant on Christ… but they did not answer my seizure disorder. And in between I did have amazing times with family… but I had more epileptic strife getting in the way, and that was tough. I watched my own seizures worsen with certain medications I would take, during them and also when I would ween for several weeks off of one and onto another. My body still would just flip out BIG TIME without it–and with it. Was a lose lose situation.

But the amazing part, it is never a lose lose situation with Christ. He always has answers. And I thank Him and praise Him for that. As for most speciality facilities for neurology don’t even take, well many first brain surgeries–but second ones and third are a big no no. I am ever so grateful for my specialty doctors at Mayo Hospital-whom have such hearts for the true need of the patient, and not their statistics. As for the second one they had some worries about-but I had so much faith. We went the next step of extra testing with the in depth electrodes in my brain-to show them what parts they were wanting to take out, if they did what would happen. Very amazing. As for my third rocked even more-as for we did that in depth electrodes —here is a glamour photo of the pain I was in, but greatly medicated praise God!! –>

A little Pain

I love this photo. Not for looks. As for what they did for me was remarkable. For what Jesus got me thru and held their hands thru. Was just amazing. They did the normal in depth electrodes, as in this picture of pain. 🙂 But on day 12 following all of this, my neurosurgeon did the awake brain surgery–literally AWAKE. And you have to be an odd ball who is fearless, like me to handle it. I am one who is totally entertained by it-amazed!! Asking about it during set up-comforting nurses getting me ready, as for all are nervous that I am. And this type of surgery is the type, that the moment if the patient freaks out, or gets uncomfortable-is the moment everything is wrapped up and can’t proceed-too much liability and damage could be done. But I just rocked thru our ROCK! Even during the pain of it, I was able to still crack my jokes. This is a part I love about myself that God created.

And I love the fact that I am three months seizure free. Driving. Very much functioning more than ever in years! At the gym again!!! Treadmill time for cardio, weights to bring back the muscles I’ve always had from long term gymnastics and weight lifting–they were withering!! And basketball with my hubby and kiddo and ROCK CLIMBING I LOVE IN THE GYM!! I LOVE THAT!! It has been awesome!!

Love you all!! Know, you all have answers out there. They just don’t always come overnight. Sometimes God is forming a close relationship of love, trust, and obedience with Him… He has His timing and plans. Keep praying!! This was a decade of His love pouring for me, and still is.

In His Love

Heather J Siebens

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